https://thrivingbeyondbreastcancer.org/ 501(c)(3) Non-Profit Breast Cancer Support Tue, 12 Aug 2025 17:05:10 +0000 en-US hourly 1 https://wordpress.org/?v=6.8.2 https://thrivingbeyondbreastcancer.org/wp-content/uploads/2024/10/cropped-Thriving-Beyond-Breast-Cancer-Favicon-32x32.png Thriving Beyond Breast Cancer https://thrivingbeyondbreastcancer.org/ 32 32 Working While Undergoing Cancer Treatment  https://thrivingbeyondbreastcancer.org/working-while-undergoing-cancer-treatment/ https://thrivingbeyondbreastcancer.org/working-while-undergoing-cancer-treatment/#respond Tue, 12 Aug 2025 15:15:37 +0000 https://thrivingbeyondbreastcancer.org/?p=158 How To Manage A Career & A Breast Cancer Diagnosis  A breast cancer diagnosis can bring your world to a halt. But for many of us, work becomes one of the few constants in an otherwise uncertain time. The tasks that we used to look at with dread now offer an escape and, in some […]

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How To Manage A Career & A Breast Cancer Diagnosis 

A breast cancer diagnosis can bring your world to a halt. But for many of us, work becomes one of the few constants in an otherwise uncertain time. The tasks that we used to look at with dread now offer an escape and, in some ways, comfort. 

This article is for those navigating the delicate balance between professional responsibilities and life-saving treatments. Working through treatment is possible, whether you’re maintaining health insurance, managing mounting expenses or simply craving a sense of normalcy — especially with the right support, tools and knowledge of your rights. 


Can I Still Work During Treatment? 

Yes. Absolutely. And for many of us at Thriving Beyond Breast Cancer, choosing to work offered emotional and financial stability in an otherwise chaotic time. Keeping a routine can help you feel grounded and maintain a sense of identity outside of your diagnosis. 

For those with employer-sponsored insurance, continuing to work may also help you retain essential coverage.

“I remember being miserable from another round of treatment, lying on my couch. All I wanted to do was feel better. And if I couldn’t feel better, at least I could feel ‘normal’ by pursuing my career. That’s actually one of the first moments that I took tangible steps to start ‘Thriving Beyond Breast Cancer.”
 

-Bess Hagans, Chief Executive Officer of TBBC


Understanding Your Rights (FMLA, ADA & More) 

The Family and Medical Leave Act (FMLA) allows eligible employees to take up to 12 weeks of unpaid, job-protected leave for medical reasons, including breast cancer treatment. The Americans with Disabilities Act (ADA) requires employers to provide reasonable accommodations, like adjusted work hours or modified duties, if you qualify. 

However, not every workplace or employee is covered, so check your eligibility and consult with HR or an employment rights advocate. You don’t have to disclose everything about your diagnosis, but documentation from your healthcare provider may be required to access these benefits.

Can I Be Fired For My Diagnosis? 

No. A breast cancer diagnosis does not give your employer permission to terminate you based on your health status. Federal laws like the ADA and the FMLA offer strong protections. If you’re eligible, these laws can ensure you have time off for treatment and that your job (or an equivalent one) is still waiting for you.

That said, it’s important to know:

  • You can still be let go for reasons unrelated to your diagnosis, like company-wide layoffs or performance issues unrelated to your medical condition.
  • Clear documentation is your best protection. Communicate openly, put everything in writing and keep a personal record of your treatment-related requests and responses.
  • If you’re concerned about being treated unfairly, consider speaking with HR, a patient advocate or a legal professional specializing in workplace rights.

Note: This is not intended to be legal advice, but rather a foundation that helped us navigate our paths. 


Questions To Ask Your Employer: 

Consider having a conversation with your employer or HR representative even before treatment begins: 

  • What is our company’s medical leave or short-term disability policy?
  • Can I temporarily reduce my hours or shift to part-time work while maintaining my insurance benefits?
  • Do you offer flexible scheduling, remote work or hybrid options?
  • Who do I speak with about reasonable accommodations?
  • What paperwork is required to request medical leave or FMLA?
  • Can I use sick time or vacation concurrently with medical leave?
  • How will my benefits and insurance be affected if I take extended leave?

Managing Side Effects While Working

Chemotherapy and radiation can bring a host of physical and cognitive symptoms. Here are a few tips that may help:

  • Keep snacks or mints handy to combat nausea
  • Dress in layers to manage hot flashes or chills
  • Use note-taking apps to manage chemo brain
  • Build in short breaks to rest or stretch throughout the day
  • Keep a “chemo kit” handy that contains the small comforts to keep you going 

If symptoms become severe, do not push yourself past your limits. Seek medical advice, as this may be a sign of something more serious.

Remote Work, Flexibility & Schedule Tips

A flexible work environment can be a game-changer during treatment. If your role allows, ask about shifting to project-based tasks or adjusting deadlines around infusion days and rest periods. You might find that a hybrid schedule (even just working a few hours a day from home) helps you stay connected without overextending.

“I tell every woman I know who is going through this: Be honest with yourself & your team about what’s sustainable. You are not a burden for needing adjustments. You are going through something unimaginable by so many — & being productive while doing it.” 

-Bess Hagans, Chief Executive Officer of TBBC


Preventing Burnout & Preserving Mental Health

It’s easy to hit a wall, even when your workplace is supportive. Burnout can creep in quickly, especially when you’re balancing appointments, side effects and responsibilities at home. And that chronic stress can promote cancer cell growth and development. 

Here are a few ways to protect your energy:

  • Set clear boundaries — including “off” hours for rest
  • Ask for help when needed (colleagues, family, even task automation!)
  • Build in one small daily ritual that’s just for you — not cancer, not work

And remember: Grit is not the same thing as ignoring your needs! Be gentle with yourself. Rest is also productive

Online Resources & Advocacy Tools To Help You

Thriving Beyond Breast Cancer Is Here To Support You

TBBC is a non-profit organization dedicated to supporting young women navigating a breast cancer diagnosis. Our greatest strength comes from lived experience — because we’ve been there! We can help you advocate for yourself in the workplace, with insurance companies and beyond. 

Yes, a financial stipend can relieve an ample amount of stress. But knowing the right questions to ask can potentially ensure your entire treatment is covered. Through our growing network of trusted partners, you’ll also gain access to resources, guidance and support every step of the way.


What If Your Employer Does Not Offer Insurance?

If your job doesn’t offer health insurance — or if you’re self-employed, part-time or in a career gap — you still have options for coverage during treatment. 

  • Healthcare.gov Marketplace Plans: You may qualify for a low-cost plan (especially after a major life event like a cancer diagnosis or job change). Many plans cover chemo, surgery and follow-up care. Also, you can’t be denied coverage due to your diagnosis.
  • Medicaid: Depending on your income and state, Medicaid can offer free or low-cost coverage. It’s worth checking eligibility even if you’re unsure. Many women we have spoken to are surprised to qualify during treatment.
  • COBRA: If you had insurance through a previous employer, COBRA allows you to continue coverage (typically for 18 months) by paying the full premium. It can be expensive, but it’s a way to avoid gaps in care.
  • Hospital Financial Assistance Programs: Many major hospitals offer income-based assistance or charity care, especially for uninsured patients. A hospital social worker or financial navigator can walk you through applications and available aid.
  • Local & National Cancer Support Organizations: Groups like The Pink Fund, Patient Advocate Foundation and Susan G. Komen’s Treatment Assistance Program may help cover premiums, co-pays, or even daily expenses.

About The Author: 

Bess Hagans is the CEO and co-founder of Thriving Beyond Breast Cancer. She is also a breast cancer thriver herself. Diagnosed at a young age, Bess experienced firsthand the overwhelming financial, emotional and logistical challenges that come with navigating treatment while trying to maintain a career, a home and a sense of self. 

Today, she channels that experience into action, continuously educating herself on patients’ rights, insurance policies and workplace protections to ensure no woman has to face breast cancer uninsured or unsupported.

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Breast Cancer Treatments & Sexual Wellness https://thrivingbeyondbreastcancer.org/breast-cancer-treatments-sexual-wellness/ https://thrivingbeyondbreastcancer.org/breast-cancer-treatments-sexual-wellness/#respond Tue, 15 Jul 2025 16:06:44 +0000 https://thrivingbeyondbreastcancer.org/?p=152 Breast cancer treatments can profoundly impact sexual wellness. Explore how you can reclaim your comfort, confidence & intimacy.

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Finding Solutions To An Often Overlooked (But Very Valid) Aspect Of The Breast Cancer Journey

Sexual wellness isn’t always part of the conversation during breast cancer treatment — but it should be. For many women, intimacy becomes a confusing, painful or emotionally charged topic during this time.

If you’re experiencing disruptions to your sexual wellness, know that you’re not alone. And you deserve solutions that help you reconnect with yourself and your body.

While every experience is unique, one thing remains true: your sexual health matters. We explore what survivors wish they had known, what providers want you to understand and what’s available to help you thrive again!


Let’s Talk About It: Sexual Wellness Deserves A Seat At The Table

Breast cancer affects more than just breast tissue. It impacts identity, hormones, body image and personal connection. Yet, many survivors say this topic is swept under the rug.

“You’re not selfish for wanting to feel good in your own body again. Your sexual health is just as valid as any other part of your healing. You’re allowed to ask questions, set boundaries & pursue solutions without guilt.”

-Bess Hagans, Founder of Thriving Beyond Breast Cancer


What Breast Cancer Treatment Does To The Body & Why It Affects Intimacy

Understanding what each treatment does can help you make sense of how your body is responding — and what can be done to support it.

Different Treatments Affect Sexual Health In Different Ways: 

  • Surgery (lumpectomy, mastectomy, reconstruction): Can affect breast sensation, body image and nerve pathways.
  • Chemotherapy: Often causes fatigue, vaginal dryness, early menopause and decreased libido.
  • Radiation Therapy: Can lead to localized skin irritation, fatigue and physical discomfort.
  • Hormone Therapy: May suppress estrogen, leading to vaginal atrophy, mood swings, brain fog and libido changes.
  • Targeted/Immunotherapy: Often milder, but may still disrupt energy levels and emotional balance.

When Your Breasts Don’t Feel Like Your Own Anymore

Surgical intervention — whether partial or complete — can significantly impact how you relate to your body. You may experience loss of sensation, scar sensitivity, asymmetry or simply a changed relationship with a part of yourself that once symbolized femininity or intimacy. 

That’s real. That’s valid. And it’s okay to grieve, adapt or even redefine intimacy on your own terms. Some women pursue breast reconstruction surgery or cosmetic breast augmentation, while others seek different avenues to restore their confidence. 

There are no wrong answers when it comes to reclaiming your sense of self.  


How Breast Cancer Treatments Impact Hormones

Many breast cancer treatments reduce or block estrogen, leading to symptoms that feel alarmingly similar to menopause including mood swings, low libido, vaginal dryness and night sweats. For younger women in particular, this change can feel abrupt and disorienting. 

Hormonal shifts also affect lubrication, blood flow and arousal response, making intimacy feel difficult or even painful without support.


Common Sexual Side Effects Many Breast Cancer Patients Experience

  • Vaginal dryness or irritation
  • Pain during sex (dyspareunia)
  • Reduced libido or arousal response
  • Delayed orgasm or inability to orgasm
  • Fatigue or discomfort in sexual positions
  • Increased emotional sensitivity
  • Brain fog & issues concentrating 
  • Difficulty connecting with their own body

Each of these has a reason behind it — and, importantly, potential solutions.


Real-World Tools & Support That Can Help

Sexual wellness doesn’t begin and end with intercourse. It’s about feeling confident, comfortable and connected. There are a range of options that can help you rediscover pleasure, whether you’re partnered or solo.

“I tell my patients that sexual health can be seen as a barometer for overall wellbeing. If changes are experienced after chemo, it’s a sign to look deeper & support the body’s healing process holistically.”

-Courtney Gilbert, PA-C | Sexual Wellness Expert


Products That Can Help Make Intimacy Comfortable Again

Nonsurgical Solutions To Enhance Sexual Wellness

  • Vaginal Estrogen Therapy: Improves vaginal dryness & elasticity with minimal systemic absorption; often safe for survivors.
  • Pelvic Floor Therapy: Strengthens vaginal muscles, improves comfort during sex, reduces urinary incontinence & restores confidence.
  • The O-Shot®: Uses your body’s own platelets to increase arousal, lubrication & orgasmic response.
  • diVa® Vaginal Laser Therapy: Gently resurfaces vaginal tissue to boost moisture, elasticity & overall sensation.
  • Cognitive Behavioral Therapy (CBT): Helps rebuild self-image, reduce anxiety & reconnect with your body & identity.
  • Red Light Therapy: An emerging solution that supports cellular repair & blood flow to promote natural lubrication & vaginal tissue health.
  • Specialized Wellness Programs: A holistic approach that combines nutrition, movement, sleep & stress support to help restore hormonal & emotional balance.
  • Mindfulness & Breathwork: Reduces anxiety, increases body awareness & supports more relaxed intimacy by stimulating the vagus nerve.

[The Importance Of Mental Health During Treatment]

You should always ask your provider or a sexual wellness specialist for guidance before trying a new product or professional treatment.

“Chemotherapy can have a profound impact on the body’s hormone production, leading to vaginal dryness or decreased libido. Lifestyle interventions like stress reduction & targeted nutritional support can mitigate these effects & support the return of healthy hormone balance. You deserve to feel pleasure and connection! 

-Courtney Gilbert, PA-C | Sexual Wellness Expert


Sexual Health Is Health

Sexual activity (including self-pleasure!) isn’t just about connection. It can reduce stress, improve sleep, support hormone regulation and elevate mood. One study published in 2021 found that survivors who prioritized sexual health experienced improved emotional resilience and body image over time.

Additional Health Benefits Of A Healthy Sex Life During This Journey

Other studies have shown that oxytocin — released during physical intimacy — may even indirectly reduce pain perception and improve trust in relationships. Another from 2014 suggests that simply talking about sexual wellness with a professional during radiotherapy leads to better psychological adaptation. 

So yes, when you’re ready, intimacy can be part of your healing.


How To Talk About It With Your Partner

This can be hard. But it doesn’t have to be perfect.

Let your partner know how you’re feeling, what’s changed, and what you need now. Use simple, gentle phrasing like:

  • “I want to feel close, but I’m not sure how right now.”
  • “Touch feels different than it used to — can we explore slowly?”
  • “I’m figuring out how certain things feel again, and I’d love your support.”

“Compassion, patience & humor can go a long way. These conversations can be awkward! It’s OK to laugh through some of this together. That, in itself, is its own form of intimacy!” 

-Bess Hagans, Founder of Thriving Beyond Breast Cancer


When To See A Specialist

You don’t have to wait until it gets “bad enough.” If you’re experiencing pain, distress, confusion or relationship strain due to changes in intimacy — that’s more than enough reason to speak to:

  • A gynecologist or pelvic health specialist
  • A sexual wellness expert or PA familiar with cancer recovery
  • A pelvic floor therapist
  • A therapist trained in trauma or identity reconstruction

Additional FAQs About Sex & Breast Cancer Recovery

Is it safe to have sex during chemotherapy?

In most cases, yes but precautions (like condom use) may be recommended, especially when your immune system is low. Check with your doctor.

Will I ever want sex again?


It’s very likely that you will. It may take time, patience, and experimentation, but desire often returns in new or familiar ways.

What if I feel nothing during intimacy?


Nerve damage, hormonal suppression and stress can all play a role. There are physical and therapeutic solutions available to help you readjust and reintroduce sensation. 

What if my partner doesn’t understand what I’m going through?


This fear is not uncommon. Consider attending a counseling session together or sharing articles like this to spark deeper conversations.


You’re Not Alone In This — & You Deserve To Feel Good Again!

Sexual wellness is a part of thriving. You deserve support and empowerment every step of the way, whether you’re exploring your identity post-surgery, adjusting to new sensations or rediscovering connection.


About The Authors

Bess Hagans is the Chief Executive Officer of Thriving Beyond Breast Cancer and a proud breast cancer thriver herself. Her firsthand experience navigating the physical, emotional and sexual challenges of treatment led her to establish TBBC — a nonprofit organization committed to supporting younger women with breast cancer through financial stipends, free mental health resources, honest conversations and real-life connection to help patients through this journey.

Courtney Gilbert, PA-C is a functional medicine provider at Donaldson in Columbus, Ohio. With a rich history in women’s health and pelvic floor therapy, she specializes in sexual wellness, fertility optimization and hormone replacement therapy (HRT) treatments. Courtney’s holistic approach empowers women to reclaim their health, confidence and intimacy at every stage of life.

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A Career. A Kindergartener. And A Cancer Diagnosis. https://thrivingbeyondbreastcancer.org/a-career-a-kindergartener-and-a-cancer-diagnosis/ https://thrivingbeyondbreastcancer.org/a-career-a-kindergartener-and-a-cancer-diagnosis/#respond Wed, 25 Jun 2025 13:02:43 +0000 https://thrivingbeyondbreastcancer.org/?p=143 How Lauren Niehaus Balanced Everything Throughout Her Breast Cancer Journey 

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How Lauren Niehaus Balanced Everything Throughout Her Breast Cancer Journey 

At 35, Lauren was living a vibrant life. Working out 4-5 days a week. Keeping vegan. Raising an incredible child while carrying a financial firm into the future as a Director of Marketing.

So when she felt a lump in her breast in September 2021, cancer was the last thing on her mind. 

“I felt great! I was physically in shape & even my doctor initially said it was ‘likely nothing.’”

-Lauren Niehaus, Thriver

It wasn’t. Six months and 8 days after her initial diagnostic mammogram and ultrasound — classified as low-risk — she was called back. This time, things moved faster. 

Two breast biopsies and 1 lymph node biopsy confirmed it: invasive ductal carcinoma, triple positive, stage 2b/3a.

“I somehow already knew the results, but still when the call came in & I heard the 3 words ‘you have cancer’ … there was nothing after that,” Lauren says. “After hanging up, I had about a million questions. I had no idea what type, what stage or really what to do next.” 


There’s Nothing More Fierce Than A Mother’s Grit 

Lauren’s treatment plan was intensive: six rounds of chemotherapy, a year-long immunotherapy regimen, a double mastectomy with 21 lymph nodes removed, 25 rounds of radiation, a DIEP flap reconstruction, and eventually, a full hysterectomy two years later. She also underwent a LYMPHA procedure — a preventive surgery to reduce the risk of lymphedema.

If you’ve experienced cancer before, you can grasp the magnitude of her journey. 

Through it all, Lauren remained proactive in her care. At one stage, she had a delayed allergic reaction to Perjeta, a drug commonly used for HER2+ breast cancer. Her oncologist sought to eliminate from the plan.

But Lauren comes from the digital marketing world, so you know she was going to do her own research first and double-check before casting any potential solutions aside! 

“I read some stats about the chances of achieving pCR with & without Perjeta. I begged him to let me try once more. He held it during my third treatment, but let me try again during my fourth. Within seconds of the drip starting, I reacted, so he removed it for all future infusions.”

-Lauren Niehaus, Thriver


Parenting, Healing & An Incredible Support Network

Despite the grueling treatments, Lauren continued working full-time remotely. Her support system consisted of her husband, extended family and career flexibility. 

“All our family lives 500+ miles away, but they all stepped up in a huge way. We had a third adult in the house all summer — my parents, in-laws and sister took turns flying in. My job was incredibly supportive with my schedule, since I had tons of appointments throughout my active treatment.” 

Talking to her 6-year-old daughter about the illness was its own challenge. 

“At the beginning, we never used the word ‘cancer.’ We just told her I was sick,” she says. “I was going to have a small surgery and the medicine that wouldn’t make me feel well and caused hair loss would eventually make me feel better.”

Lauren didn’t care if other people knew about her diagnosis. She was more nervous about what other children might say to her in response. 

“Another child could say, ‘Oh, my grandpa died of cancer.’ Or an adult would get visibly worried after hearing about it. I didn’t want her to have any idea, at the time, how serious this diagnosis was,” she says. 


Redefining Thriving & Navigating Post-Treatment Life

For Lauren, thriving isn’t just about surviving. It’s a mindset to live every day. 

“The biggest misconception is that once you complete chemo and surgery, you’re done and your life goes back to normal,” she says. “This is the furthest thing from the truth! You still have tons of maintenance and appointments. I finished active treatment at 36 and was catapulted into menopause with 10 years of hormone therapy.”

Every Blessing Counted, Every Victory Celebrated 

Dealing with the financial aspect of a breast cancer diagnosis is one of the hardest hurdles for younger patients to overcome. Many of these women aren’t yet settled in their careers. Their insurance claims may get denied. They don’t have the security safety net to help them get through.

Thankfully, this was not the case for Lauren. All of her treatments and surgeries were approved. She is incredibly grateful for her unique circumstances and now uses her skills to help others who may be struggling after their own diagnosis. 


Lifting Others With Thriving Beyond Breast Cancer

Lauren found a sense of community and shared strength online, where she connected with other young women navigating breast cancer, including TBBC founder Bess Hagans.

“I stumbled upon her while I was going through treatment. Bess was diagnosed about 6 months ahead of me, so I was always learning the next portion of the treatment plan from her!

-Lauren Niehaus, Thriver

Now, Lauren channels her experience into action. After serving on the TBBC board, she’s joined as a part-time team member, helping expand support for young women just like her.

She sees undeniable potential for the organization, especially as the rate of young women being diagnosed with breast cancer continues to increase. As demonstrated by her own journey, community is one of the strongest tools we have in the toolbox for both during treatment and in survivorship. 

She hopes to be instrumental in helping more women get through this stage in their lives with grace, determination and sanity!

“Lauren isn’t just an ‘asset’ to this organization — she is a freaking powerhouse. Her drive. Her skills. Her heart. She has been vital to our growth & ability to reach more women in need.”

-Bess Hagans, Chief Executive Officer of Thriving Beyond Breast Cancer

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Breast Cancer Among The LGBTQ+ Community https://thrivingbeyondbreastcancer.org/breast-cancer-among-the-lgbtq-community/ https://thrivingbeyondbreastcancer.org/breast-cancer-among-the-lgbtq-community/#respond Thu, 19 Jun 2025 18:38:15 +0000 https://thrivingbeyondbreastcancer.org/?p=140 Why Inclusive, Informed & Culturally Competent Healthcare Matters More Than Ever Early detection and prevention are critical when it comes to breast cancer. However, not everyone is starting from the same baseline.  A landmark NIH study cited by the CDC tracked more than 87,000 premenopausal women across more than a million person-years. The study found […]

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Why Inclusive, Informed & Culturally Competent Healthcare Matters More Than Ever

Early detection and prevention are critical when it comes to breast cancer. However, not everyone is starting from the same baseline. 

A landmark NIH study cited by the CDC tracked more than 87,000 premenopausal women across more than a million person-years. The study found that both lesbian and bisexual women had a slightly elevated predicted breast cancer incidence compared to their heterosexual counterparts — with rates of 131.61 and 131.72 per 100,000 person-years respectively, compared to 122.55 for heterosexual women. 

Researchers concluded that this increased risk persists throughout the entire premenopausal phase of life, raising major implications for care accessibility and awareness in this population.

How To Make Sense Of This Disparity 

There are many potential reasons behind this trend; none of which are inherent to identity, but instead tied to social and lifestyle factors. For instance, factors that increase the risk of breast cancer like lower rates of childbirth, later childbirth or less frequent breastfeeding are more common among lesbian and bisexual women. Additionally, behaviors that might be reduced during parenthood (like alcohol use, smoking or high stress levels) may remain more prevalent. 

Why Some Patients Are Misdiagnosed or Underserved

Many healthcare settings still lack training in LGBTQ+ health, leading to incorrect assumptions, overlooked symptoms or generalized treatment plans that don’t reflect the needs of each individual. For example, a transgender patient may not be screened for conditions that align with their biology, or a gay woman may not feel comfortable disclosing her sexual activity, leading to missed preventative care opportunities.

Even the most compassionate, well-trained provider may never get the chance to make a difference if a patient has faced discrimination from authority figures in the past. Those lived experiences shape how safe someone feels, and whether they even show up for care in the first place.

“When people don’t feel safe being honest with their provider, important health issues can go unspoken and untreated. That’s why culturally competent, affirming healthcare isn’t just a value. It isn’t a luxury. It’s a necessity.”
–Bess Hagans  | Thriving Beyond Breast Cancer

Why This Is Important: When Patients Feel Respected, Great Things Happen! 

When patients feel seen and respected by their providers, they’re more likely to be honest, ask questions and return for follow-up care — all of which are essential to great outcomes. Studies show that feeling understood improves trust, lowers stress and increases adherence to medical advice — especially during complex journeys like cancer care. Respectful communication also leads to more accurate lifestyle and health disclosures, which can be life-saving.

In short: when patients feel safe, they show up more fully and care becomes truly collaborative.

How To Support Your Mental Health


What Does Culturally Competent Care Look Like?

Culturally competent care goes beyond checking a box. It’s about creating an experience that feels safe, affirming and personalized at every step. This can include: 

  • Using inclusive language naturally and without overcorrection
  • Avoiding assumptions about sexual orientation, gender identity or relationship status
  • Understanding the unique health risks and disparities LGBTQ+ people face
  • Updating intake forms and EMR systems to include gender identity and sexual orientation
  • Creating welcoming physical spaces — from waiting room signage to restroom access
  • Offering easy-to-find digital resources that directly speak to the needs of underrepresented communities
  • Asking about pronouns and chosen names, and using them consistently
  • Encouraging ongoing provider education around bias, trauma and affirming care
  • Practicing active listening, empathy and genuine respect in every interaction
  • Hosting public-facing events that allow teams to learn more about the emerging challenges facing their patient base

Questions Providers Can Ask To Create Safe, Affirming Spaces

Small shifts in language can lead to major shifts in trust. Providers can start with:

  • “Are there any aspects of your identity or background you want me to be aware of during your care?”
  • “Can you tell me about your sexual health history and any practices you’d like to discuss?”
  • “How supported do you feel by your community or family?”
  • “How supported do you feel by our practice? How could I work to improve that trust?”

These questions signal openness and help patients feel safe enough to share the full picture.


Creating Your Own Therapeutic Alliance 

Building a network of trusted support can make all the difference. A “therapeutic alliance” refers to a core group of people who are invested in your healing: family, friends, mental health providers, medical specialists and others who truly get it. 

These are the people that get you. 

“This alliance becomes your rock. This is your core support team that sees the full picture of your health. Your identity. Your goals. They do what they know best to help you move forward with clarity.”
–Bess Hagans  | Thriving Beyond Breast Cancer

Thriving Beyond Breast Cancer Wants To Be A Part Of Your Therapeutic Alliance 

Our nonprofit offers financial stipends, emotional support and real-world guidance rooted in our own lived experiences. Whether you need help navigating this unexpected financial chaos or simply need someone who understands what you’re going through, we’re here to walk beside you.

What We Can Offer You

Additional Ways Patients Can Advocate For Themselves

While the responsibility should never fall solely on the patient, it can be helpful to:

  • Bring a support person to appointments when possible
  • Write down key health concerns or identity-related details ahead of time
  • Ask your provider: “Have you worked with LGBTQ+ patients before?” 
  • Know that you have the right to switch providers if you’re not being treated with dignity
  • Understand that a learning curve still exists and that some providers may need overt cues (such as a rainbow pin, sharing a light-hearted story involving your same-sex partner, etc.) to grasp the importance 

What We All Gain From Inclusive Healthcare

When care is inclusive, everyone benefits. Patients are more likely to seek preventive services, disclose symptoms sooner and stick to their care plans. Providers gain deeper trust, stronger relationships and better outcomes for all. 

Culturally competent care isn’t just good practice — it’s life-saving! 


About The Author 

Bess Hagans is the Chief Executive Officer of Thriving Beyond Breast Cancer, a nonprofit dedicated to meeting the needs of young women facing a breast cancer diagnosis. As a patient herself, Bess knows firsthand how overwhelming it can be to navigate treatment and daily life — especially at a young age. She now channels that lived experience into meaningful advocacy, working to uplift and support patients, while championing the unique challenges faced by members of the LGBTQ+ community.

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A Story Of Resilience, Advocacy & Being Human Together https://thrivingbeyondbreastcancer.org/a-story-of-resilience-advocacy-being-human-together/ https://thrivingbeyondbreastcancer.org/a-story-of-resilience-advocacy-being-human-together/#respond Fri, 30 May 2025 09:00:00 +0000 https://thrivingbeyondbreastcancer.org/?p=129 Our Conversation With Erin Perkins, Author of Young Breast Cancer: Your Story and Mine”

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Our Conversation With Erin Perkins, Author of Young Breast Cancer: Your Story and Mine”

In early 2021, Erin Perkins received a call. The call. The one that would alter the course of her life: she had been diagnosed with breast cancer. 

With two young children and a history of community service, Erin found herself confronting a devastating situation that she initially believed was improbable due to her age — at just 34 years old. 

A cancer diagnosis is chaotic. It can make clarity impossible to find. But for this young mother, survivor, and now author, one belief kept her grounded:

“I operate fully in the ‘humans being human together’ mentality that Rev. Desmond Tutu talked about,” Perkins says. “And that concept, mixed with my desire after cancer to do the ‘somedays’ right away, inspired the writing of my book.

That book — Young Breast Cancer: Your Story and Mine: A Compact Guide — is her answer to a question many newly diagnosed young people don’t even know how to ask: What now? 

Perkins offers practical insight and deeply personal storytelling to soften the sharp edges of diagnosis, treatment and recovery. She draws from her own experiences to resonate on a deeper level with the reader.

And that experience? It was a wild ride, which actually began with a misdiagnosis and a decision to change her medical team, emphasizing the importance and power of patient advocacy. 

“We don’t have to settle as cancer patients. No matter the diagnosis, we have agency, we can know what we need (and want) and we can fight for it.”

Strength, Persistence & Difficult Decisions  

The day before her 35th birthday, she received her diagnosis: Stage IIB, Grade 3 Invasive Ductal Carcinoma, triple-negative with 2% estrogen, 0% progesterone and 0% HER2 positivity — a more aggressive and less common form of breast cancer. 

Completing 16 chemotherapy infusions just a week before her 10th wedding anniversary, this chapter culminated in a bilateral mastectomy. 

Erin was informed that she would only be a candidate for radiation if she underwent a lumpectomy because of her original diagnosis and tumor size. This caused internal turmoil as she kept going back and forth, trying to pick the one with the best outcomes. 

“For me, that was agonizing. I had already decided to have an aesthetic flat closure for my reconstruction,” Perkins says. “The radiation oncologist I met with agreed to allow radiation after bilateral mastectomy if I did not achieve a ‘pathology complete response’ (pCR) after chemo. Three days after my mastectomy, scrolling through myChart on August 9, 2021, I learned I had pCR. The treatment phase was over.”

Choosing aesthetic flat closure, she embraced her new body image, even commemorating it with a meaningful chest tattoo inspired by one of her favorite bands, mewithoutYou.

A visual symbol of survival and solidarity, this tattoo represents the unity of all birth flowers — a reminder that ‘you’re everyone else.

“Some people ask why I chose to be flat, and I love talking about it,” she explains. “The gist is I feel more like myself this way, especially now that I have the tattoo I dreamt up when I was diagnosed.”


Her Book Provides Support Using Education & Emotional Grace

Released March 18, 2025, her book is intentionally concise, designed to be a gentle companion that offers grace rather than an overwhelming manual that demands action. It combines personal anecdotes with practical advice on topics such as understanding medical terminology, parenting during treatment and managing relationships. 

“This book is me in book form,” she says. “It’s a handheld, gentle friend, here for you if you are newly diagnosed. It also has a QR code that leads to a site I am keeping current, and adding resources and statistics to as they become available.”

Importantly, she often avoids toxic positivity. Instead, Perkins focuses on validating the complex emotions that accompany a cancer diagnosis and ensuring the reader understands that they are not alone in this journey.

“I wrote in a way that only supports and doesn’t ask anything of the reader except to keep going, even if doing so whilst donning a scowl,” she notes. “Go scared, go tired, go sick, go angry, and go wishing you could stop going; just make sure to keep going.”


Young Breast Cancer: Your Story and Mine Is Available Now 

For those seeking connection or resources, Perkins invites you to reach out to her:

Perkins also serves as the president of the working board of directors at The Young Breast Cancer Project, focusing on education, storytelling, and community research. Her commitment to advocacy is rooted in her belief in shared humanity and the power of collective support.

In sharing her story, Perkins offers a beacon of understanding and solidarity to young individuals facing breast cancer, reminding them that they are not alone in their journey.

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The 2025 Thriving Beyond Breast Cancer Gala  https://thrivingbeyondbreastcancer.org/the-2025-thriving-beyond-breast-cancer-gala/ https://thrivingbeyondbreastcancer.org/the-2025-thriving-beyond-breast-cancer-gala/#respond Mon, 19 May 2025 18:53:19 +0000 https://thrivingbeyondbreastcancer.org/?p=79 A Night of Purpose, Power & Profound Impact On April 5, 2025, the Vue Columbus was transformed into a beacon of interstellar solidarity as we hosted our annual Gala. This cornerstone event brought together survivors, thrivers, supporters and advocates to illuminate stories of resilience and raise crucial funds for young women navigating breast cancer. What […]

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A Night of Purpose, Power & Profound Impact

On April 5, 2025, the Vue Columbus was transformed into a beacon of interstellar solidarity as we hosted our annual Gala. This cornerstone event brought together survivors, thrivers, supporters and advocates to illuminate stories of resilience and raise crucial funds for young women navigating breast cancer.


What We Saw: 

What We Heard: 

The evening featured heartfelt stories from thrivers, survivors and medical professionals, illuminating the strength and determination that define the TBBC community. Guests were moved by narratives that underscored the importance of comprehensive support — emotional, financial and educational — for those affected by breast cancer.

What We Did Together: 

Every dollar raised during the Gala directly funds TBBC’s initiatives, including mental health support groups, financial stipends and educational resources tailored for women aged 21-40 facing breast cancer. These programs serve to alleviate the multitude of burdens that often accompany a diagnosis, ensuring that no one has to face their journey alone.

“As a Thriver, I felt an overwhelming sense of support. And as a founder of TBBC, I experienced hope in ways I haven’t seen yet. The support we offer transforms into hope for so many others — and that hope is what keeps us going.” 

-Bess Hagans 

A Special Thank You To You For Your Support! 

The success of the 2025 Gala is a testament to the unwavering commitment of our community. Together, we are not only raising awareness but also providing tangible support that empowers young women to thrive beyond their diagnosis.

Looking To Support Patients Beyond The Gala?

Direct Monetary Donations

Email Us For Volunteer Opportunities

Simply Visit The Thriving Shop

Never Miss An Event →

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Your Mental Health During Breast Cancer Treatment https://thrivingbeyondbreastcancer.org/your-mental-health-during-breast-cancer-treatment/ https://thrivingbeyondbreastcancer.org/your-mental-health-during-breast-cancer-treatment/#respond Wed, 30 Apr 2025 17:48:04 +0000 https://thrivingbeyondbreastcancer.org/?p=70 Right when you were preparing to take the next big steps in life, you’re now navigating complex medical decisions, financial concerns and a wave of new emotions. But you're not alone.

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Resources & Supportive Insights Vital To Our Experiences

A breast cancer diagnosis can feel like the ground beneath you has disappeared. The life you were building suddenly takes a backseat. For younger women, this can be especially overwhelming — right when you were preparing to take the next big steps in life, you’re now navigating complex medical decisions, financial concerns and a wave of new emotions.

But you are not alone.

Others have walked this path before, and we are here to share what helped us. There is strength in knowing that support exists and that you don’t have to face this journey without guidance.


Mental Health & Positive Health Outcomes

Your mental health plays an essential role in your recovery. Research has shown that emotional well-being can profoundly influence physical healing, energy levels and even treatment outcomes. Prioritizing your mental health isn’t just about feeling better — it’s about giving yourself the best possible foundation for healing.

Use Gratitude To Connect & Reconnect With Your Support Pillars 

One of the most impactful things you can do is lean on those who have been your support system up to this point in your life. Who helped you through finals in college? Who was the first to know you were engaged? Who showed you the ropes at your first career job? 

If you feel comfortable, reach out to friends, family members or mentors who have guided you in other difficult moments. Your community — no matter how big or small — can be an anchor during this time. They will be grateful knowing they made an impact on your life and that you trust them still today. 

Assistance From A Therapist That Specializes In Cancer Journeys

Cancer changes your world in ways that are difficult to process on your own. Speaking with a therapist who understands the emotional toll of cancer can make a significant difference in how you move forward. However, finding a therapist with experience in oncology can be challenging — we experienced this first time. 

If you already have a therapist, ask if they have worked with cancer patients before. If not, they may be able to refer you to someone who has. In addition, online communities and peer support groups can provide supplemental guidance, offering understanding and encouragement from others who truly “get it.”

Thriving Beyond Breast Cancer’s Mental Health Resources

We believe that no one should have to navigate breast cancer alone. That’s why Thriving Beyond Breast Cancer offers a free online mental health programs for those in active treatment, and survivors.

Our support groups are designed specifically for young women facing breast cancer and the aftermath. In these groups, you’ll find emotional support, practical advice and a community of women who understand your experience firsthand. Together, we help each other gain valuable coping skills, reduce feelings of isolation and offer a chance to have your voice heard. 

The Heavy Burden of Healthcare Costs

Navigating treatment is hard enough, but the financial strain can make it feel even tougher. The reality of medical bills, insurance complexities and out-of-pocket costs can be overwhelming, especially when your energy is already stretched thin.

Financial literacy and understanding insurance options are crucial, yet so many resources go overlooked. To help make this process easier, we’ve compiled some of the most reliable and comprehensive financial aid resources available.


[Financial Aid for Cancer Patients]

The Thriving Beyond Breast Cancer Stipend Program

We recognize the unique financial challenges that come with a diagnosis. We’ve been there, and we are committed to making sure that no woman has to choose between financial stability and getting the care she needs. Our breast cancer stipend program helps alleviate the financial strain of medical treatments and medication costs, providing young women with real financial support when they need it most.

[Learn More]

Striking The Information Ecosystem Balance

The internet can be a powerful tool for finding information and connecting with others. But it can also lead you down rabbit holes filled with conflicting advice, horror stories and misinformation.

 “If following survivors on social media helps, do that. If being reminded about it constantly hurts, delete the apps from your phone. There’s no ‘one way’ to support yourself! Use what you know about yourself to balance ‘staying informed’ & ‘staying sane.’”

-Bess Hagans 

If Possible, Don’t Go Sedentary

It’s tempting to shut down physically when you’re going through treatment but movement matters. Even light physical activity can help manage fatigue, improve mood and enhance therapeutic outcomes. You don’t need to push yourself too hard — household chores, gentle stretching and knocking out a few work tasks can make a difference. The goal is to keep your body and mind engaged in a way that feels right for you.

Supplements & Nutrition To Support Mental Health

  • Magnesium – Regulates stress hormones and promotes relaxation, reducing anxiety and muscle tension.
  • Vitamin D – Supports mood stability and immune function; low levels are linked to depression.
  • Omega-3 Fatty Acids – Supports brain health, reduces inflammation and improves emotional well-being.
  • B Vitamins (Especially B6 & B12) – Essential for energy production and neurotransmitter function, helping with mental clarity and focus.
  • Ashwagandha – An adaptogen that may help lower cortisol (the stress hormone) and promote emotional balance.
  • Probiotics – Often called ‘the 2nd brain of the body,” the gut is directly tied to mental health, and probiotics can support digestion and mood regulation.

Remember: Self-Care Is Healthcare

Taking care of yourself during treatment is not selfish! This was one of the hardest lessons we had to learn ourselves. Self-care isn’t about indulgence; it’s about finding ways to reduce stress, ease discomfort and maintain a sense of control over your life.

  • Gentle Movement: Whether it’s stretching, walking or yoga, light movement can help ease fatigue and improve mood.
  • Mindfulness & Meditation: Guided meditation and breathing exercises can help reduce anxiety and promote relaxation. 
  • Creative Outlets: Writing, cooking, painting or playing music can be therapeutic ways to express emotion and get lost in a different reality.
  • Comfort Items: Soft blankets, warm baths, a day trip to the medspa and comfortable clothing can make difficult days feel a little easier.
  • Rest Without Guilt: If your body needs rest, listen to it. Sleep and recovery are just as important as treatment.
  • Do “The Thing”: That musical you’ve wanted to attend? The fancy restaurant you’ve wanted to try? The Sephora spree? Just do it! You have our endorsement. 

About The Author

Bess Hagans is the Chief Executive Officer of Thriving Beyond Breast Cancer and a breast cancer survivor. She understands firsthand the mental, emotional and financial burdens that come with a diagnosis. Through her leadership, she is committed to empowering young women by providing real resources, financial aid and emotional support to help them navigate this journey with strength, resilience and community.

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Reliving Our September 1st Garden Party https://thrivingbeyondbreastcancer.org/2024-garden-party/ https://thrivingbeyondbreastcancer.org/2024-garden-party/#respond Wed, 02 Oct 2024 13:13:30 +0000 https://thrivingbeyondbreastcancer.org/?p=43 Together with 10TV’s Yolanda Harris and The RealReal, we hosted a classic summer celebration on September 1st set against a backdrop of vibrant florals and the beautiful Columbus cityscape. 

The evening was filled with great drinks and live music, while guests customized their own floral arrangements and explored the on-site permanent jewelry bar.

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An Evening of Elegance & Confidence In Columbus, Ohio

Together with 10TV’s Yolanda Harris and The RealReal, we hosted a classic summer celebration on September 1st set against a backdrop of vibrant florals and the beautiful Columbus cityscape. 

The evening was filled with great drinks and live music, while guests customized their own floral arrangements and explored the on-site permanent jewelry bar.

A Party With A Purpose

Beyond its elegance, the event was a meaningful fundraiser for our organization, with proceeds benefiting young women diagnosed with breast cancer. 

“I found that there was so much financial insecurity and mental instability post-diagnosis. It is troublesome and it breaks my heart. But I can’t sit around and do nothing about it! We are not just bringing awareness to the disparity of resources and the rise of breast cancer among young women, but also providing financial and mental support for them.” 

Improving Real Lives & Elevating Looks 

In a nod to luxury and sustainability, guests had the opportunity to consign old luxury items with The RealReal, earning a $100 credit in the process. This not only offered a chance to refresh their wardrobes but also supported a great cause.

Our Thank You To All Who Attended Our 2024 Garden Party 

It was a night that combined style and purpose, leaving attendees with both cherished memories and a sense of contributing to a worthy cause. We, at Thriving Beyond Breast Cancer, look forward to seeing you again soon! 

Never Miss An Event →

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Financial Aid For Cancer Patients https://thrivingbeyondbreastcancer.org/financial-aid-for-cancer-patients/ https://thrivingbeyondbreastcancer.org/financial-aid-for-cancer-patients/#respond Wed, 02 Oct 2024 12:07:56 +0000 https://thrivingbeyondbreastcancer.org/?p=40 A breast cancer diagnosis can bring overwhelming emotional and physical challenges, and the financial burden is often a significant part of the stress. The Thriving Beyond Breast Cancer financial aid guide aims to help younger women navigate available options to ease their journey.

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Discovering The Right Cancer Financial Assistance Program For You

A breast cancer diagnosis can bring overwhelming emotional and physical challenges, and the financial burden is often a significant part of the stress. The Thriving Beyond Breast Cancer financial aid guide aims to help younger women navigate available options to ease their journey.

Grouping The Costs You Will Likely Need To Consider

  • Medical Expenses: Doctor visits, chemotherapy, radiation, surgery and medications.
  • Support Services: Counseling, physical therapy and home health care.
  • Daily Living Costs: Transportation to treatment, childcare and household help.

The Unique Financial Challenges Younger Patients Face

Young breast cancer patients often face unique financial challenges, including limited income as they are still establishing their careers and may have less financial cushion. Time away from work for treatment can lead to lost wages, exacerbating their financial strain. Additionally, they may encounter gaps in insurance coverage, resulting in limited or inadequate support for their medical expenses.

Questions To Ask Your Current Health Insurance Provider

  • What Are My Coverage Limits: Understand what is covered and any limits on treatments or medications.
  • What Are My Out-of-Pocket Costs: Clarify co-pays deductibles, and any financial caps.
  • Do You Offer Financial Assistance Programs: Ask if they offer any internal programs to help cover additional costs.
  • On-Site Financial Rep: Many larger cancer centers have a financial representative on staff who can help you navigate insurance and answer some of the additional financial questions that you may have. 

What Are “Co-Pay Relief Programs?”

Co-pay relief programs help cover out-of-pocket costs for prescriptions and treatments, specifically targeting conditions like cancer. These programs provide financial support for medication co-payments and usually require documentation, such as proof of income and medical expenses. 

CancerCare is perhaps the most prolific co-pay relief program for cancer patients in the United States. 

Pharmaceutical & Drug Manufacturer Co-Pay Assistance Programs 

The vast majority of chemotherapy pharmaceutical companies offer assistance programs designed to help offset the cost of their medications. You can find a list of these co-pay programs here. 

Can Grants Help Me Cover Cancer Treatment Costs? 

Yes. Finding grants can be essential for covering cancer-related expenses. Search online using reliable databases and websites to locate grants specifically for breast cancer patients, contact nonprofits that specialize in cancer support, and check local resources such as charities and community foundations that often assist.

The Cancer Financial Assistance Coalition 

This organization offers a database of available grants that can help cover specific costs related to cancer treatment. You can search for local grants that may not be easily found elsewhere. 

Explore Your Grant Options →

The “Thriving Beyond Breast Cancer” Stipend Program

Our organization educates and empowers young women beyond their breast cancer diagnosis. We know the unique financial difficulties that come with breast cancer treatment firsthand and are committed to providing the support these women need. 

Our program offers free expense stipends to help alleviate the financial strain of medical and medication costs, ensuring that they receive the assistance they deserve during this critical time.

Let’s Talk Today →

Cancer Tax Deductions, Credits & Relief

You may be eligible for various tax deductions and credits, including:

  • Medical Expenses Deduction: Deduct unreimbursed medical expenses that exceed 7.5% of your adjusted gross income.
  • Disability Tax Credit: If your condition impacts your ability to work, you might qualify for additional credits.
  • Income Tax Relief: Look into state-specific programs that offer tax relief for cancer patients. For example: Mileage to appointments and costs for seminars related to your diagnosis may be available, while some self-employed taxpayers can deduct their health insurance premiums as an income deduction. 

Government Programs That Can Help

  • Medicaid: Offers assistance based on income and family size.
  • Social Security Disability Insurance (SSDI): Provides benefits if you’re unable to work due to your condition.
  • Supplemental Security Income (SSI): Offers financial support for those with limited income and resources.

Predatory Programs:

Scams & Traps To Avoid When Seeking Financing

  • High Fees: Avoid programs or organizations that charge high fees for their services.
  • Unverified Sources: Only trust information from reputable and verified sources.
  • Too-Good-To-Be-True Offers: Watch out for offers that seem unrealistic or promise guaranteed funds.

When To Seek Professional Finance Advising

  • You have a complex financial situation involving multiple income sources or assets, or you have undergone a divorce. 
  • You need help with long-term financial planning and management.
  • You need assistance in finding and applying for various aid programs.
  • You want additional reassurance that you are handling your situation as responsibly as possible 

Additional Financial Education Organizations

Disclaimer: We are not financial advisors. We are here to lay out the options and resources available to you as you make the best decisions for yourself moving forward. 


About The Author 

Bess Hagans is the Chief Executive Officer of Thriving Beyond Breast Cancer. As a breast cancer survivor, she understands the financial strain that comes with a cancer diagnosis. She believes that education is a critical component of empowerment and seeks to leverage her experiences to improve the lives of patients.

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